Ann & Robert H. Lurie Children's Hospital of Chicago
225 East Chicago
Box 30
Chicago, IL 60611
Principal Investigator: Angela Waanders, MD
Phone: (773) 975-8664
Boston/Harvard Center for NF and Allied Disorders
Neurofibromatosis Program
300 Longwood Avenue
Boston, MA 02115
Principal Investigator: Nicole Ullrich, MD, PhD
Email Address: Nicole.ullrich@childrens.harvard.edu
Phone: (617) 632-4595
Children's Hospital at Westmead, University of Sydney
Cnr Hawkesbury Road and Hainsworth Street, Westmead
Locked Bag 4001, Westmead, 2145
Sydney, NSW, Australia
Principal Investigator: Geoff McCowage, MD
Phone: (02) 9845 3057
This site will only recruit for the BMP-2 (Bone) study.
Children's Hospital Los Angeles
4650 Sunset Blvd, MS#82
Los Angeles, CA 90027
Principal Investigator: Tena Rosser, MD
Phone: (323) 361-7319; (323) 361-2480
Children’s National Hospital
Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010
Principal Investigator: Miriam Bornhorst, MD
Phone: (202) 476-5299; (202)476-4481
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue - ML 4006
Cincinnati, OH 45229-3039
Principal Investigator: Peter de Blank, MD
Email Address: cancer@cchmc.org
Phone: (513) 636-8773; (513) 636-2047
Indiana University
1044 West Walnut Street
Cancer Center, Room 402A
Indianapolis, IN 46202
Principal Investigator: Steven Rhodes, MD
Phone: (317) 274-4928
Johns Hopkins Hospital
1550 Orleans St.
Ste 1M-16
Baltimore, MD 21231
Principal Investigator: Jaishri Blakely, MD
Phone: 410-502-6732; 410-955-8009
Massachusetts General Hospital
326 Cambridge Street 210A
Boston, MA 02114
Principal Investigator: Justin Jordan, MD
Email Address: jtjordan@mgh.harvard.edu;maste@partners.org
Phone: (617) 643-1933
The Mayo Clinic
200 First Street SW
Rochester, MN 55905
Principal Investigator: Dusica Babovic-Vuksanovic, MD
Email Address: RSTCGResearch@mayo.edu
Phone: (507) 284-3215
Memorial Sloan Kettering Cancer Center
1275 York Avenue, Box 234
New York, NY 10065
Principal Investigator: Matthias A. Karajannis, MD, MS
Phone: 212-639-3171
National Cancer Institute
Pediatric Oncology Branch
10 Center Drive
Building 10 CRC, room 1-5750
Bethesda, MD 20192-1101
Principal Investigator: Brigitte Widemann, MD
Phone: (301) 402-1848; (301) 496-8009
New York University Medical Center
Hassenfeld Clinic
New York, NY 10016
Principal Investigator: Kaleb Yohay, MD
Phone: (212) 263-9945
University of Alabama at Birmingham
Department of Genetics
Kaul Human Genetics Building
1530 3rd Ave S
Birmingham, AL 35294
Principal Investigator: Bruce R. Korf, MD, PhD
Program Director: Karen Cole-Plourde
Phone: (205) 934-5140
University of Chicago
Pediatric Neurology MC 3055
5841 S. Maryland Avenue
Chicago, IL 60637
Principal Investigator: James Tonsgard, MD
Phone: (773) 203-2344
University of Pennsylvania
Children's Hospital of Philadelphia
3400 Civic Center Boulevard
Philadelphia, PA 19104
Principal Investigator: Michael Fisher, MD
Phone: (267) 426-5503
University of Utah
Division of Medical Genetics
Department of Pediatrics
2C412 SOM
50 N. Mario Capecchi Dr.
Salt Lake City, Utah 84132
Principal Investigator: David Viskochil, MD, PhD
Email Address: dave.viskochil@hsc.utah.edu
Phone: (801) 587-9017
Washington University
Department of Neurology
Box 8111
660 South Euclid Avenue
St.Louis, MO 63110
Principal Investigator: Amy Armstrong, MD
Email Address: Peds-HemOnc_Regulatory@email.wustl.edu
Phone: (314) 454-4240; (314) 747-5384
Children's Healthcare of Atlanta
Department of Pediatric Neurology
605 Chantilly Drive NE, Suite 300
Atlanta, GA 30324
*Currently NF2 study only
Principal Investigator: David S. Wolf, MD, PhD
Phone: (404) 785-4688
Texas Scottish Rite Hospital
Texas Scottish Rite Hospital for Children
2222 Welborn St
Dallas, TX 75219
*Currently BMP2 study only
Principal Investigator: Laura Klesse, MD
Phone: (214) 559-8562; Pager: (972) 205-8399
The Royal Children’s Hospital
50 Flemington Road, Parkville
Victoria 3052 Australia
Phone: +61 3 9345 5522
University of Minnesota
Pediatric Hematology/Oncology
D-557 Mayo Memorial Building
420 Delaware Street SE, MMC 484
Minneapolis, MN 55419
Principal Investigator: Christopher Moertel, MD
Phone: 612-365-8100; 612-626-5267
University of Texas Southwestern
Neurofibromatosis Clinic
Children's Health Dallas
1935 Medical District Drive
Dallas, Texas 75235
Principal Investigator: Laura Klesse MD, PhD
Phone: 214-456-2382
Murdoch Children’s Research Institute
Royal Children’s Hospital
Flemington Road, Parkville
Victoria 3052 Australia
Principal Investigator: Jonathan Payne, MD
Phone:+61 3 8341 6200