The National Spinal Cord Injury Statistical Center (NSCISC), located at the University of Alabama at Birmingham (UAB) Department of Physical Medicine and Rehabilitation, supports and directs the collection, management and analysis of the National SCIMS Database, which was established in 1973 as a repository of data collected through the collaborative efforts of federally funded SCI Model System Centers. There are 18 SCI Model System Centers currently contributing data to the Database, with a total of 32 Centers contributing data since the Database’s inception. Through June of 2022, there were more than 51,000 persons who have sustained traumatic SCI registered in the National SCIMS Database and more than 30,000 persons had follow-up data. This makes it the world's largest and longest active SCI research database and the world’s most extensive source of available information about the characteristics and life course of individuals with SCI. There are individuals enrolled into the National SCIMS Database who have now been followed for 50 years after injury.
Meet the NSCISC Team
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Yuying Chen, MD, PhD
Yuying Chen, MD, PhD
Project Director
Dr. Chen is a tenured Professor in the UAB Department of PM&R. She is a board-certified physiatrist from Taiwan and also an epidemiologist with extensive training and experience in database management, research methodology, and statistical analysis. With this unique blend of medical and research training, Dr. Chen has been very productive and gained international recognition for her research involving epidemiology, mortality, and secondary conditions after SCI including obesity, racial health disparities, and social determinants of health. Dr. Chen’s research has been continuously funded through the NIDILRR, NIH, PVA, and industries over the last 2 decades. She currently serves on the Editorial Board of the Topics in SCI Rehabilitation and the Executive Committee of the International SCI Data Sets. She is also a member of the Oversight Committee of the NINDS SCI Common Data Elements, International Spinal Cord Society’s Prevention Committee, as well as American Spinal Injury Association’s Award Committee. Dr. Chen has been affiliated with NSCISC since 2001, serving as Statistical Analyst until summer 2005, when she assumed the role of the Project Director. She has led a number of studies and published more than 75 manuscripts in peer-reviewed journals, most of which involved the use of the SCIMS Database. -
Victoria Allen, MPH
Victoria Allen, MPH
Data Collection and Analysis Manager
Ms Allen has ˃15 years of longitudinal data collection and management experience. Ms. Allen’s primary goals are to manage processes that sustain high-quality data and develop strategies to improve efficiency of the 18 SCIMS Centers’ important work. To that end, she manages a comprehensive, integrated learning and development program, monitors data quality assessments, and is always on the look-out for new procedures and programs to improve processes and sustain and improve high-quality, reliable data for research. r -
Phil Klebine, MA
Phil Klebine, MA
Knowledge Translation Director
Mr. Klebine joined the UAB Department of PM&R in 1998 to assist the UAB-SCIMS, UAB-TBIMS, and NSCISC in designing, developing, and directing the adaptation, implementation, and translation of research knowledge into an understandable and contextually relevant format for utilization. In this role, Mr. Klebine has written, directed, and produced videos as well as serving as lead or contributing author on book chapters, journal publications, magazine articles, and fact sheets. In addition, he is highly active community advocate for people with disabilities. Since 2004, he has served on the Board of Directors for Disability Rights and Resources, a non-profit organization supporting the principles of community-based integration, employment, consumer control, and equal access for all people with disabilities. Since 2008, he has served on the Alabama Governor’s Office on Disability State Advisory Council.
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Sarah Banasiewicz, BA
Sarah Banasiewicz, BA
Research Administrative Associate
Originally a Form I data collector for both TBI and SCI Model Systems at UAB, Sarah has moved up to working with the National Spinal Cord Injury Statistical Center as of May 2022. Sarah has shifted her focus to helping Dr. Yuying Chen and Tori Allen in the data center. Her responsibilities including but not limited to, transitioning the four new data centers into the 2022-2026 funding cycle as well as helping all centers work through the process of the upcoming non-traumatic SCI data collection through July 2023. While Sarah’s main focus is handling the day to day management of administration of the UAB Department of Physical Medicine and Rehabilitation research group, Sarah does spend some of her time helping with data abstraction for SCIMS Form I and Form II follow-up for the Virginia and Missouri centers. -
Troy Bland, BS, BM
Troy Bland, BS, BM
Programmer/Analyst II + Database Analyst
Troy holds a bachelor’s degree in Computer Science from UAB as well as a degree in Audio Production & Engineering from Berklee College of Music, Boston, MA. He came to UAB in 2003 as the Systems Administrator for the Biostatistics & Bioinformatics Unit, where he provided computer and network infrastructure support for the management as well as designed efficient data management solutions for clinical/research data. He also led the Web Development Support Group to assist NSCISC with the initial implementation and continuing development of the SCIMS Database system for 2 years before he officially joined NSCISC in 2009 as a Web Programmer in order to provide more stable programming support. Currently, he manages the National SCI database and is also the programmer/analyst for the National SCI Statistical Center.