| Description | ACT (SHRINE) is HIPAA-compliant and IRB-approved self-service platform that enables cohort discovery using an open access to national network of leading academic medical research center. This tool enable researchers to generate aggregate de-identify patient count by querying across approved or partnered institutions electronic medical record systems based on an investigator’s real time iterative searches. |
| Data Type | Structured data (labs, meds, procedures, billing codes) |
| Who can access | UAB Faculty and Staff, CCTS Partners (coming soon) |
| Patient Population | UAB + over 40 CTSAs |
| Results | Aggregate Counts |
| Downloadable | Yes |
| IRB Requirement | **No individual IRB Approval required |
| Cost to Use | CCTS/Informatics Institute Supported |
| ACT Network Login |
EHR, Electronic Health Record; HCO, Healthcare Organization; PHI, Protected Health Information; PII, Personally identifiable information, HIPAA, Health Insurance Portability and Accountability Act; CTSA, Clinical and Translational Science Award(ee)
** Permitted Users, covered entities, and any Authorized Party on User's behalf listed in (Research Title/Grant Title) may use i2b2 self-service Limited Data Sets only for the purposes which shall be limited to research, public health activities, and health care operations as defined in the HIPAA Privacy Rule (per IRB protocol E160105006) and not for no other purpose.